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European Reference Networks - Latest updates (180)
RSSCommission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases
JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)
Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together
European Reference Networks: providing specialised support to Ukraine in the field of rare diseases
European Reference Networks: a flagship EU action for patients with rare diseases
European Reference Network: Clinical practice guidelines and clinical decision support tools programme
Evaluation of the European Reference Networks: New documents (Evaluation criteria, Evaluation Manual, Evaluation Toolbox)
Evaluation of the European Reference Networks
Minutes - 21st meeting of the Board of Member States on ERNs (28 October 2021)
Minutes - 22nd meeting of the Board of Member States on ERNs (26 November 2021)
Minutes - 23rd meeting of the Board of Member States on ERNs (26 January 2022)
Statement - ERNs initiative to support people with rare diseases and complex conditions affected by the war in Ukraine