European Reference Networks - Publications

European Reference Networks - 2023 presentation booklet

ERN Animation clip for patients and health professionals

Rare diseases: how the European Reference Networks support health professionals

Rare diseases: how the European Reference Networks support patients

Rare diseases: how the European Reference Networks support patients - teaser

Rare diseases: European Reference Networks support health professionals - teaser 1

Rare diseases: European Reference Networks support health professionals - teaser 2

European Expert Network for Rare communicable diseases and other rare pathologies in the context of Mobility and Globalization (EURaDMoG)

Rare Disease Day 2020

Information flyer for patients and healthcare professionals

EU health programme support to ERNs

Video clip to introduce the European Reference Networks for rare and complex diseases

Flyer - European Reference Networks for rare and complex diseases

Brochure - European Reference Networks for rare and complex diseases

Rare diseases

Report on the state of the art of rare disease activities in Europe – 2014 edition (Part 1: Overview of rare disease activities in Europe)

Leaflet on European Reference Networks

The voice of the Rare Disease Patients: Experiences and expectations of over 3000 Patients on Rare Diseases Patient Registries in Europe – EURORDIS