European Reference Networks - Publications

European Reference Networks - 2023 presentation booklet

European Expert Network for Rare communicable diseases and other rare pathologies in the context of Mobility and Globalization (EURaDMoG)

Information flyer for patients and healthcare professionals

EU health programme support to ERNs

Flyer - European Reference Networks for rare and complex diseases

Brochure - European Reference Networks for rare and complex diseases

Rare diseases

Report on the state of the art of rare disease activities in Europe – 2014 edition (Part 1: Overview of rare disease activities in Europe)

The voice of the Rare Disease Patients: Experiences and expectations of over 3000 Patients on Rare Diseases Patient Registries in Europe – EURORDIS