Call for new members of the Commission's expert group on rare diseases

Call for new members of the Commission's expert group on rare diseases

The European Commission invites individual experts and organisations acting in the field of rare diseases to join its expert group on rare diseases established under Commission Decision 2013/C 219/04 of 30 July 2013

Once appointed, the expert group will carry out certain tasks in the field of rare diseases requested by the Commission's services. These tasks can include assisting in drawing up guidelines and recommendations, providing advice on implementing EU actions, monitoring, evaluating and disseminating results of EU and national measures, and international cooperation.

This public call for expressions of interest relates to the appointment of members representing:

• Individual experts having public health or scientific expertise at Union level in the field of rare diseases
• European associations of producers of products or service providers relevant for patients affected by rare diseases
• Patients’ organisations in the field of rare diseases
• European professional associations or scientific societies acting in the field of rare diseases

Members and their representatives are appointed to the panel for a term of three years and may be renewed after having responded to a further call for expressions of interest.

Contact information

For any further information on this call, please contact SANCO-CEGoRD-callec [dot] europa [dot] eu (SANCO-CEGoRD-call[at]ec[dot]europa[dot]eu)

To support EU policy on rare diseases, the Commission expert group on rare diseases may:

• assist the Commission in the drawing up of legal instruments and policy documents, including guidelines and recommendations;
• advise the Commission in the implementation of Union actions and suggest improvements to the measures taken;
• advise the Commission in the monitoring, evaluation and dissemination of the results of measures taken at Union and national level;
• advise the Commission on international cooperation;
• provide an overview on Union and national policies;
• foster exchanges of relevant experience, policies and practices between the Member States and the various parties involved.

The expert group was set up by a Commission Decision of 30 July 2013 (2013/C 219/04) which repealed Decision 2009/872/EC regarding the former European Union committee of experts on rare diseases (EUCERD) .

The members and their representatives to the Commission expert group on rare diseases were appointed by a Decision of 7 January 2014 of the Director General for Health and Consumers following a call for expression of interest.

The group is composed of one representative per Member State, stakeholder organisations and rare diseases experts.

• See the members of the Commission expert group on rare diseases
• See the rules of procedure
• See the meetings of the expert group