Video recording - EUHPP Live Webinar: European Reference Network evaluation: the way forward (4 December 2024)

This webinar presented the European Reference Network evaluation results report which was published on 29 November 2024.

The report summarizes the results of a comprehensive evaluation of European Reference Networks (ERNs) and its members, five years after their creation, focusing on their role in addressing complex and rare conditions. 24 ERNs and 836 HCPs from 24 EU Member States and Norway participated in the evaluation. The evaluation included self-evaluations, document reviews, ERN interviews, on-site audits of members and stakeholder interviews.

This report, drawing on a wide range of data, increases the understanding of the essential role of the ERN system in addressing rare diseases and conditions across Europe. It also presents relevant information on the structure, maturity, activity and impact of the ERN system, and identifies opportunities for improvement based on the findings of the stakeholder interviews and the evaluation to further enhance the evaluation process and ensure the continued sustainability of the ERN system.

The information and views set out in this report are those of the Independent Evaluation Body and do not necessarily reflect the official opinion of the Commission/Executive Agency.

More information

• Watch the recording of this webinar until 14 December 2024, using the password @HPP_webinar2024
• Find the presentations in the Agora network of the EU Health Policy Platform (registration required)