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Public Health

Projects supported by the EU

Adequate definition, codification and inventorying of rare diseases

Cooperation between rare diseases organisations

  • strengthens collaboration at European level among patient organisations
  • develops partnerships among alliances
  • increases the visibility and operational capacity of rare-disease organisations and networks

Action for rare diseases

  • help existing European rare-disease networks share information more easily
  • promote better classification
  • develop strategies and mechanisms for exchanging information between rare-disease victims, volunteers and professionals
  • define relevant health indicators
  • develop comparable epidemiological data at EU level
  • support the exchange of best practise
  • develop measures for patient groups