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The voice of the Rare Disease Patients: Experiences and expectations of over 3000 Patients on Rare Diseases Patient Registries in Europe – EURORDIS

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Publication date
1 November 2013
Author
Directorate-General for Health and Food Safety

Description

The voice of the Rare Disease Patients: Experiences and expectations of over 3000 Patients on Rare Diseases Patient Registries in Europe – EURORDIS

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1 NOVEMBER 2013
The voice of the Rare Disease Patients: Experiences and expectations of over 3000 Patients on Rare Diseases Patient Registries in Europe – EURORDIS