Rare diseases and European Reference Networks - Publications

Factsheet - How the European Commission works on Rare Diseases and the European Reference Networks (ERNs)

European Reference Networks - Working for patients with rare, low-prevalence and complex diseases (2026 edition)

Factsheet - EU delivering on rare diseases for patients and families

European Reference Networks: A success story for patients living with a rare disease

European Reference Networks. A success story for patients living with a rare disease

Factsheet - EU delivering on rare diseases for patients and families

Factsheet - How the European Commission works on Rare Diseases and the European Reference Networks (ERNs)

Patient Journeys on Hereditary Spastic Paraplegias (HSPs)

Factsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care

European Reference Networks - 2023 presentation booklet

Factsheet - EU Action on Rare Diseases

ERN Animation clip for patients and health professionals

Rare diseases: how the European Reference Networks support health professionals

Rare diseases: how the European Reference Networks support patients

Rare diseases: how the European Reference Networks support patients - teaser

Rare diseases: European Reference Networks support health professionals - teaser 1

Rare diseases: European Reference Networks support health professionals - teaser 2

Rare Disease Day 2020

European Expert Network for Rare communicable diseases and other rare pathologies in the context of Mobility and Globalization (EURaDMoG)