Rare diseases and European Reference Networks - Publications

Factsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care

European Reference Networks - 2023 presentation booklet

Factsheet - EU Action on Rare Diseases

European Expert Network for Rare communicable diseases and other rare pathologies in the context of Mobility and Globalization (EURaDMoG)

Factsheet - Application of the ERN model in European Cross-Border Healthcare cooperation

Information flyer for patients and healthcare professionals

EU health programme support to ERNs

Flyer - European Reference Networks for rare and complex diseases

Brochure - European Reference Networks for rare and complex diseases

Rare diseases

Report on the state of the art of rare disease activities in Europe – 2014 edition (Part 1: Overview of rare disease activities in Europe)

Leaflet on European Reference Networks

The voice of the Rare Disease Patients: Experiences and expectations of over 3000 Patients on Rare Diseases Patient Registries in Europe – EURORDIS