Rare diseases and European Reference Networks - Key documents

Commission Report on the operation of Directive 2011/24/EU on the application of patients' rights in cross-border healthcare

Final report - Study on cross-border health services: enhancing information provision to patients

Member State Data on cross-border healthcare – Year 2016

Study - Cross-border cooperation: capitalising on existing initiatives for cooperation in cross-border regions

Final report - Patients’ Rights in the European Union: Mapping eXercise

Commission Decision on the adoption of a financing decision for 2017 and 2018 for the pilot project "Pilot project - Rare 2030 - a participatory…

Statement on the definition and minimum criteria for ERN Affiliated Partners

Final report – Study on cross-border health services: potential obstacles for healthcare providers

Commission Decision 2017/C 60/06 as regards the granting of individual licences to all Coordinators of the European Reference Networks to use the European Reference Network trademark

Final report – Study on better cross-border cooperation for high-cost capital investments in health

Member State Data on cross-border healthcare - Year 2015

Final report - Literature-based approach to defining the concept of healthcare which requires “highly specialised and cost-intensive medical…

Recommendations to support the incorporation of rare diseases into social services and policies

Recommendation on cross-border genetic testing of rare diseases in the European Union

Frequently Asked Questions (FAQs) on the procedural aspects on establishing ERNs

Commission report on the operation of Directive 2011/24/EU on the application of patients’ rights in cross-border healthcare

Rare disease European Reference Networks: Addendum to Eucerd recommendations of January 2013

Final report - Evaluative study on the cross-border healthcare Directive (2011/24/EU)

Recommendation on ways to improve codification for rare diseases in health information systems