Details
- Publication date
- 7 March 2023
- Authors
- Aragon Health Sciences Institute (IACS) | Junta de Andalucía - Fundación progreso y salud
Description
Quick Guide: Methodological Handbooks & Toolkit
Files
Introductory Document
Summary of the project
Summary of the handbooks
Handbook #1: Prioritisation of Rare or Low-Prevalence and Complex Rare Diseases that Require CPGs or CDSTs
Handbook #2: Appraisal of Existing CPGs and CDSTs for Rare or Low-Prevalence and Complex Diseases
Handbook #3: Adaptation and Adoption of Clinical Practice Guidelines and Clinical Decision Support Tools for Rare or Low-Prevalence and Complex Diseases
Handbook #4: Methodology for the Development of Clinical Practice Guidelines for Rare or Low-Prevalence and Complex Diseases
Handbook #5: Methodology for the Development of Clinical Consensus Statements for Rare or Low-Prevalence and Complex Diseases
Handbook #6: Methodology for the elaboration of Evidence Reports for rare diseases
Handbook #7: Methodology for the Development of Diagnostic, Monitoring and Therapeutic Pathways for Rare or Low-Prevalence and Complex Diseases
Handbook #8: Methodology for the Development of Evidence-Based Protocols for Rare or Low Prevalence and Complex Diseases
Handbook #9: Methodology for the elaboration of Do’s and Don’ts Factsheets for rare diseases
Handbook #10: Methodology for the Development of Quality Measures for Rare Low-Prevalence
Handbook #11: Methodology for the Elaboration of Patient Information Booklets for rare diseases
Handbook #12: Implementation and Evaluation of the Uptake of CPGs and CDSTs for rare diseases
Handbook 13: Patients’ involvement in the development of CPGs and CDSTs on rare, low-prevalence and complex diseases: a guide for the chair and members of GDGs