European Reference Network: Clinical practice guidelines and clinical decision support tools programme

Introductory Document

Summary of the project

Summary of the handbooks

Handbook #1: Prioritisation of Rare or Low-Prevalence and Complex Rare Diseases that Require CPGs or CDSTs

Handbook #2: Appraisal of Existing CPGs and CDSTs for Rare or Low-Prevalence and Complex Diseases

Handbook #3: Adaptation and Adoption of Clinical Practice Guidelines and Clinical Decision Support Tools for Rare or Low-Prevalence and Complex Diseases

Handbook #4: Methodology for the Development of Clinical Practice Guidelines for Rare or Low-Prevalence and Complex Diseases

Handbook #5: Methodology for the Development of Clinical Consensus Statements for Rare or Low-Prevalence and Complex Diseases

Handbook #6: Methodology for the elaboration of Evidence Reports for rare diseases

Handbook #7: Methodology for the Development of Diagnostic, Monitoring and Therapeutic Pathways for Rare or Low-Prevalence and Complex Diseases

Handbook #8: Methodology for the Development of Evidence-Based Protocols for Rare or Low Prevalence and Complex Diseases

Handbook #9: Methodology for the elaboration of Do’s and Don’ts Factsheets for rare diseases

Handbook #10: Methodology for the Development of Quality Measures for Rare Low-Prevalence

Handbook #11: Methodology for the Elaboration of Patient Information Booklets for rare diseases