
Brussels, 23 June 2014
- About the Conference
- Report: Highlights and conclusions
- Presentations and videos
- Contact / questions
About the Conference
Directive 2011/24/EU on the application of patients' rights in cross-border healthcare strengthens cooperation between highly specialised healthcare providers across the European Union by the establishment of a system of European Reference Networks.
Establishing European Reference Networks of highly specialised healthcare providers represents a clear added value for the EU and will help to provide affordable, high-quality and cost-effective healthcare to patients with conditions requiring a particular concentration of resources or expertise, and to improve these patients' access to the best possible expertise and care available in the EU for their condition.
The legal framework, as foreseen in the Directive 2011/24/EU, was adopted on 10th of March by the Commission, after an exhaustive consultation process with national authorities, experts, and stakeholders, providing for the criteria and conditions that Networks and its Members shall fulfil and for the establishment and evaluation of future Networks.
DG SANCO organised a conference on European Reference Network on 23rd of June in Brussels which brought together highly specialised healthcare providers, experts, national authorities, decision–makers, and independent bodies with experience in the assessment and evaluation of healthcare providers.
The aim of the conference was to discuss the state of play on the organisation of highly specialised networks and their members across the EU and to look into the next steps of the deployment process, in preparation for the forthcoming call for European Reference Networks in 2015.
Read the:
Report: highlights and conclusions
Presentations and videos
MORNING PLENARY SESSION
Welcome: Dr Andrzej Rys - Director Health Care Systems, DG Health and Consumers: Your browser does not support the video tag.
Keynote Speakers
- Only Connect: What ICT networks can do for society?
Robert Madelin
Director-General for DG CONNECT: Communications Networks, Content and Technology Your browser does not support the video tag. - Complex Systems and Networks
Yamir Moreno
Institute for Biocomputation and Physics of Complex Systems (BIFI). University of Zaragoza Your browser does not support the video tag.
ROUNDTABLE: Highly specialised healthcare: framework for the establishment of ERN
Chair Dr Paolo G. Casali - Instituto Nazionale Tumori, Italy: Your browser does not support the video tag.
- Past, present and future of centres of expertise and European reference Networks
Till Voigtländer
Clinical Institute of Neurology, Medical University of Vienna, Austria Your browser does not support the video tag. - The importance of sharing expertise and the challenge to manage the exchange of knowledge in highly specialised healthcare.
Josep Maria Borras
Partnership for Action Against Cancer (EPAAC) Your browser does not support the video tag. - Research priorities and Networks
Irene Norstedt and Philippe Cupers
European Commission - DG Research and Innovation Your browser does not support the video tag. - The ERN model: Criteria and conditions for Networks and providers. Implementation of Networks: organisation framework
Enrique Terol
European Commission - DG Health and Consumers Your browser does not support the video tag.
Session A: Highly specialised healthcare for low prevalence,rare and complex diseases
Session A-1:The view of the stakeholders organisations
Chair by Dr Andrzej Rys - Director Health Care Systems, DG SANCO: Your browser does not support the video tag.
- The view of the professionals
Edwin Borman
European Union of Medical SpecialistsYour browser does not support the video tag.
- The view of the managers
Marianne Olsson
European Health Management AssociationYour browser does not support the video tag.
- The view of the patients
Nicola Bedlington
European Patients ForumYour browser does not support the video tag.
- Questions and answers: video
Session A-2: National models
Chair: Dr Natasha Azzopardi Muscat - Public health practice and policy of EUPHA:
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- Specialised Commissioning Services in the NHS of England
Edmund Jessop
Specialised Commissioning Team, NHS England UKYour browser does not support the video tag.
- National Specialized Medical Care (NSMC) in Sweden
Lennart Christiansson
National Board of Health and Welfare of SwedenYour browser does not support the video tag.
- The Portuguese model of Centres of Reference
Jorge Penedo
Ministry of Health of PortugalYour browser does not support the video tag.
- Questions and answers
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Session A-3: Networking Experiences (Networks pilots funded by EC)
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- The Paediatric Cancer network-Expor-Net
Ruth Ladenstein
Expo-R-NetYour browser does not support the video tag.
- The refractary- epilepsy Network
Philippe Ryvlin
E-epilepsy NetworkYour browser does not support the video tag.
- European Network for Rare and Congenital Anaemias: ENERCA
Joan Lluis Vives Corron
ENERCAYour browser does not support the video tag.
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Questions and answers
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Session B: Quality, clinical criteria and performance assessment
Session B–1: Clinical and professional criteria
Chair: Ms Flaminia Macchia - Director for European Public Affairs, EURORDIS
- EURORDIS Photo Contest 2013
Flaminia Macchia
Director for European Public Affairs, EURORDIS - Enhancing medical professionalism, interdisciplinarity and quality of health care through clinical practice guideline development
Ina Kopp
German Association of the Scientific Medical Societies´Institute of Medical Knowledge-Management (AWMF-IMWi) at Philipps-University, Marburg. Germany - Establishment of clinical criteria: Best Practices, clinical guidelines and patient pathways
Judith Richardson
Clinical Pathways NICE. United Kingdom - Assessment of the use of EU clinical guidelines in a Network environment (experiences)
Marco Pierotti
The Lombardy Cancer Network (ROL). Italy
Session B-2: Accreditation, certification and evaluation
Chair: Nathalie Chaze - DG Health and Consumers
- Recognition and approval of highly specialised hospital services in Denmark
Stine Jønson
Danish Health and Medicines Authority. Denmark - The healthcare accreditation model of France
Fabienne Menot
HAS, France - Accreditation of Hospitals in Poland
Barbara Kutryba
National Centre for Quality Assessment in Health Care (NCQA) Poland - Independent assessment/accreditation models
Sébastien Audette
Accreditation Canada International
Closing remarks, Conclusions and call for action
Dr Andrzej Rys - Director Health Care Systems, DG Health and Consumers
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Contact / questions
Should you have any further questions on the event, please send an email to SANTE WEB PUBLICATION
Details
- Publication date
- 6 May 2014
- Author
- Directorate-General for Health and Food Safety