Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.IntroductionLes systèmes de santé de l’Union européenne visent à fournir des soins de qualité et d’un bon rapport coût-efficacité. Cet objectif est toutefois particulièrement difficile à atteindre pour les…EU4Health fundingSince its inception, the ERNs have received continuous funding from the Commission. Dernières mises à jour News announcement8 mars 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases1 min de lectureNews announcement29 février 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)1 min de lectureNews announcement28 février 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together1 min de lectureNews announcement16 février 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseases1 min de lectureSee all À la une ERNs EvaluationGeneral publications30 octobre 2023Direction générale de la santé et de la sécurité alimentaireEuropean Reference Networks - 2023 presentation bookletFactsheet28 février 2024Direction générale de la santé et de la sécurité alimentaireFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and careInformation video for patients and healthcare professionals Événements 07déc2023Réunions de partenairesBoard of Member States on ERNs – Exceptional meeting24oct2023Réunions de partenairesBoard of Member States on ERNs – 27th meeting27jun2023Réunions de partenairesBoard of Member States on ERNs – 26th meeting05oct2022Réunions de partenairesBoard of Member States on ERNs – 25th meeting Documents Key documentsEventsConsultationsPublicationsVideos
Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.
IntroductionLes systèmes de santé de l’Union européenne visent à fournir des soins de qualité et d’un bon rapport coût-efficacité. Cet objectif est toutefois particulièrement difficile à atteindre pour les…
News announcement8 mars 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases1 min de lecture
News announcement29 février 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)1 min de lecture
News announcement28 février 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together1 min de lecture
News announcement16 février 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseases1 min de lecture
General publications30 octobre 2023Direction générale de la santé et de la sécurité alimentaireEuropean Reference Networks - 2023 presentation booklet
Factsheet28 février 2024Direction générale de la santé et de la sécurité alimentaireFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care