Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.Visión generalLos sistemas de salud de la Unión Europea tratan de ofrecer una atención sanitaria económicamente rentable y de alta calidad. Sin embargo, esto es especialmente difícil en el caso de…EU4Health fundingSince its inception, the ERNs have received continuous funding from the Commission. Últimas actualizaciones News announcement7 de abril de 2022Minutes - 21st meeting of the Board of Member States on ERNs (28 October 2021)lectura de 1 minNews announcement7 de abril de 2022Minutes - 22nd meeting of the Board of Member States on ERNs (26 November 2021)lectura de 1 minNews announcement7 de abril de 2022Minutes - 23rd meeting of the Board of Member States on ERNs (26 January 2022)lectura de 1 minNews announcement23 de marzo de 2022Statement - ERNs initiative to support people with rare diseases and complex conditions affected by the war in Ukrainelectura de 1 minSee all Lo más destacado ERNs EvaluationGeneral publications30 de octubre de 2023Dirección General de Salud y Seguridad AlimentariaEuropean Reference Networks - 2023 presentation bookletFactsheet28 de febrero de 2024Dirección General de Salud y Seguridad AlimentariaFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and careInformation video for patients and healthcare professionals Actos 07dic2023Reuniones de sociosBoard of Member States on ERNs – Exceptional meeting24oct2023Reuniones de sociosBoard of Member States on ERNs – 27th meeting27jun2023Reuniones de sociosBoard of Member States on ERNs – 26th meeting05oct2022Reuniones de sociosBoard of Member States on ERNs – 25th meeting Documentos Key documentsEventsConsultationsPublicationsVideos
Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.
Visión generalLos sistemas de salud de la Unión Europea tratan de ofrecer una atención sanitaria económicamente rentable y de alta calidad. Sin embargo, esto es especialmente difícil en el caso de…
News announcement7 de abril de 2022Minutes - 21st meeting of the Board of Member States on ERNs (28 October 2021)lectura de 1 min
News announcement7 de abril de 2022Minutes - 22nd meeting of the Board of Member States on ERNs (26 November 2021)lectura de 1 min
News announcement7 de abril de 2022Minutes - 23rd meeting of the Board of Member States on ERNs (26 January 2022)lectura de 1 min
News announcement23 de marzo de 2022Statement - ERNs initiative to support people with rare diseases and complex conditions affected by the war in Ukrainelectura de 1 min
General publications30 de octubre de 2023Dirección General de Salud y Seguridad AlimentariaEuropean Reference Networks - 2023 presentation booklet
Factsheet28 de febrero de 2024Dirección General de Salud y Seguridad AlimentariaFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care