Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.OverzichtDe zorgstelsels in de Europese Unie moeten hoogwaardige, kosteneffectieve zorg leveren. Dit blijkt echter bijzonder moeilijk als het om zeldzame of...EU4Health fundingSince its inception, the ERNs have received continuous funding from the Commission. Laatste updates News announcement8 maart 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseasesLeestijd: 1 minNews announcement29 februari 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)Leestijd: 1 minNews announcement28 februari 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger togetherLeestijd: 1 minNews announcement16 februari 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseasesLeestijd: 1 minSee all In de kijker ERNs EvaluationGeneral publications30 oktober 2023Directoraat-generaal Gezondheid en VoedselveiligheidEuropean Reference Networks - 2023 presentation bookletFactsheet28 februari 2024Directoraat-generaal Gezondheid en VoedselveiligheidFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and careInformation video for patients and healthcare professionals Evenementen 07dec.2023Vergaderingen met partnersBoard of Member States on ERNs – Exceptional meeting24okt.2023Vergaderingen met partnersBoard of Member States on ERNs – 27th meeting27juni2023Vergaderingen met partnersBoard of Member States on ERNs – 26th meeting05okt.2022Vergaderingen met partnersBoard of Member States on ERNs – 25th meeting Documenten Key documentsEventsConsultationsPublicationsVideos
Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.
OverzichtDe zorgstelsels in de Europese Unie moeten hoogwaardige, kosteneffectieve zorg leveren. Dit blijkt echter bijzonder moeilijk als het om zeldzame of...
News announcement8 maart 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseasesLeestijd: 1 min
News announcement29 februari 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)Leestijd: 1 min
News announcement28 februari 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger togetherLeestijd: 1 min
News announcement16 februari 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseasesLeestijd: 1 min
General publications30 oktober 2023Directoraat-generaal Gezondheid en VoedselveiligheidEuropean Reference Networks - 2023 presentation booklet
Factsheet28 februari 2024Directoraat-generaal Gezondheid en VoedselveiligheidFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care