Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.ÜlevaadeEuroopa Liidu tervishoiusüsteemid soovivad pakkuda kvaliteetset ja kulutõhusat ravi. Harvik- ning harva esinevate komplekshaiguste puhul on see aga äärmiselt keeruline, ...EU4Health fundingSince its inception, the ERNs have received continuous funding from the Commission. Viimati lisatud News announcement8. märts 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases1 min lugemistNews announcement29. veebruar 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)1 min lugemistNews announcement28. veebruar 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together1 min lugemistNews announcement16. veebruar 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseases1 min lugemistSee all Peamised punktid ERNs EvaluationGeneral publications30. oktoober 2023Tervise ja toiduohutuse peadirektoraatEuropean Reference Networks - 2023 presentation bookletFactsheet28. veebruar 2024Tervise ja toiduohutuse peadirektoraatFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and careInformation video for patients and healthcare professionals Sündmused 07dets2023Kohtumised partneritegaBoard of Member States on ERNs – Exceptional meeting24okt2023Kohtumised partneritegaBoard of Member States on ERNs – 27th meeting27juuni2023Kohtumised partneritegaBoard of Member States on ERNs – 26th meeting05okt2022Kohtumised partneritegaBoard of Member States on ERNs – 25th meeting Dokumendid Key documentsEventsConsultationsPublicationsVideos
Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.
ÜlevaadeEuroopa Liidu tervishoiusüsteemid soovivad pakkuda kvaliteetset ja kulutõhusat ravi. Harvik- ning harva esinevate komplekshaiguste puhul on see aga äärmiselt keeruline, ...
News announcement8. märts 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases1 min lugemist
News announcement29. veebruar 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)1 min lugemist
News announcement28. veebruar 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together1 min lugemist
News announcement16. veebruar 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseases1 min lugemist
General publications30. oktoober 2023Tervise ja toiduohutuse peadirektoraatEuropean Reference Networks - 2023 presentation booklet
Factsheet28. veebruar 2024Tervise ja toiduohutuse peadirektoraatFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care
