Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.OversigtEU's sundhedssystemer skal sikre omkostningseffektiv pleje af høj kvalitet. Dette er dog vanskeligt i tilfælde af sjældne eller...EU4Health fundingSince its inception, the ERNs have received continuous funding from the Commission. Seneste nyt News announcement8. marts 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases1 min læsetidNews announcement29. februar 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)1 min læsetidNews announcement28. februar 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together1 min læsetidNews announcement16. februar 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseases1 min læsetidSee all De vigtigste begivenheder ERNs EvaluationGeneral publications30. oktober 2023Generaldirektoratet for Sundhed og FødevaresikkerhedEuropean Reference Networks - 2023 presentation bookletFactsheet28. februar 2024Generaldirektoratet for Sundhed og FødevaresikkerhedFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and careInformation video for patients and healthcare professionals Arrangementer 07dec2023PartnermøderBoard of Member States on ERNs – Exceptional meeting24okt2023PartnermøderBoard of Member States on ERNs – 27th meeting27jun2023PartnermøderBoard of Member States on ERNs – 26th meeting05okt2022PartnermøderBoard of Member States on ERNs – 25th meeting Dokumenter Key documentsEventsConsultationsPublicationsVideos
Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.
OversigtEU's sundhedssystemer skal sikre omkostningseffektiv pleje af høj kvalitet. Dette er dog vanskeligt i tilfælde af sjældne eller...
News announcement8. marts 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases1 min læsetid
News announcement29. februar 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)1 min læsetid
News announcement28. februar 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together1 min læsetid
News announcement16. februar 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseases1 min læsetid
General publications30. oktober 2023Generaldirektoratet for Sundhed og FødevaresikkerhedEuropean Reference Networks - 2023 presentation booklet
Factsheet28. februar 2024Generaldirektoratet for Sundhed og FødevaresikkerhedFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care