Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.ApžvalgaEuropos Sąjungos sveikatos priežiūros sistemų paskirtis – aukštos kokybės ir ekonomiškai efektyvių paslaugų teikimas. Vis dėlto tai itin sunku užtikrinti retų ar mažai paplitusių...EU4Health fundingSince its inception, the ERNs have received continuous funding from the Commission. Naujausia informacija News announcement2024 m. kovo 8 d.Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseasesSkaitymo laikas: 1 minNews announcement2024 m. vasario 29 d.JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)Skaitymo laikas: 1 minNews announcement2024 m. vasario 28 d.Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger togetherSkaitymo laikas: 1 minNews announcement2024 m. vasario 16 d.European Reference Networks: providing specialised support to Ukraine in the field of rare diseasesSkaitymo laikas: 1 minSee all Svarbiausi faktai ERNs EvaluationGeneral publications2023 m. spalio 30 d.Sveikatos ir maisto saugos generalinis direktoratasEuropean Reference Networks - 2023 presentation bookletFactsheet2024 m. vasario 28 d.Sveikatos ir maisto saugos generalinis direktoratasFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and careInformation video for patients and healthcare professionals Renginiai 07gruo.2023Partnerių susitikimaiBoard of Member States on ERNs – Exceptional meeting24spa.2023Partnerių susitikimaiBoard of Member States on ERNs – 27th meeting27bir.2023Partnerių susitikimaiBoard of Member States on ERNs – 26th meeting05spa.2022Partnerių susitikimaiBoard of Member States on ERNs – 25th meeting Dokumentai Key documentsEventsConsultationsPublicationsVideos
Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.
ApžvalgaEuropos Sąjungos sveikatos priežiūros sistemų paskirtis – aukštos kokybės ir ekonomiškai efektyvių paslaugų teikimas. Vis dėlto tai itin sunku užtikrinti retų ar mažai paplitusių...
News announcement2024 m. kovo 8 d.Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseasesSkaitymo laikas: 1 min
News announcement2024 m. vasario 29 d.JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)Skaitymo laikas: 1 min
News announcement2024 m. vasario 28 d.Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger togetherSkaitymo laikas: 1 min
News announcement2024 m. vasario 16 d.European Reference Networks: providing specialised support to Ukraine in the field of rare diseasesSkaitymo laikas: 1 min
General publications2023 m. spalio 30 d.Sveikatos ir maisto saugos generalinis direktoratasEuropean Reference Networks - 2023 presentation booklet
Factsheet2024 m. vasario 28 d.Sveikatos ir maisto saugos generalinis direktoratasFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care