Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.PregledZdravstveni sustavi u Europskoj uniji nastoje pružiti visokokvalitetnu i troškovno isplativu skrb. Međutim to je posebno teško ostvariti u slučaju rijetkih bolesti ili...EU4Health fundingSince its inception, the ERNs have received continuous funding from the Commission. Najnovije vijesti News announcement8. ožujka 2024.Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseasesPredviđeno vrijeme čitanja: 1 minNews announcement29. veljače 2024.JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)Predviđeno vrijeme čitanja: 1 minNews announcement28. veljače 2024.Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger togetherPredviđeno vrijeme čitanja: 1 minNews announcement16. veljače 2024.European Reference Networks: providing specialised support to Ukraine in the field of rare diseasesPredviđeno vrijeme čitanja: 1 minSee all Istaknute teme ERNs EvaluationGeneral publications30. listopada 2023.Glavna uprava za zdravlje i sigurnost hraneEuropean Reference Networks - 2023 presentation bookletFactsheet28. veljače 2024.Glavna uprava za zdravlje i sigurnost hraneFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and careInformation video for patients and healthcare professionals Događaji 07pro2023Partnerski sastanciBoard of Member States on ERNs – Exceptional meeting24lis2023Partnerski sastanciBoard of Member States on ERNs – 27th meeting27lip2023Partnerski sastanciBoard of Member States on ERNs – 26th meeting05lis2022Partnerski sastanciBoard of Member States on ERNs – 25th meeting Dokumenti Key documentsEventsConsultationsPublicationsVideos
Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.
PregledZdravstveni sustavi u Europskoj uniji nastoje pružiti visokokvalitetnu i troškovno isplativu skrb. Međutim to je posebno teško ostvariti u slučaju rijetkih bolesti ili...
News announcement8. ožujka 2024.Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseasesPredviđeno vrijeme čitanja: 1 min
News announcement29. veljače 2024.JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)Predviđeno vrijeme čitanja: 1 min
News announcement28. veljače 2024.Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger togetherPredviđeno vrijeme čitanja: 1 min
News announcement16. veljače 2024.European Reference Networks: providing specialised support to Ukraine in the field of rare diseasesPredviđeno vrijeme čitanja: 1 min
General publications30. listopada 2023.Glavna uprava za zdravlje i sigurnost hraneEuropean Reference Networks - 2023 presentation booklet
Factsheet28. veljače 2024.Glavna uprava za zdravlje i sigurnost hraneFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care