Mard rariBejn 27 u 36 miljun ruħ fl-UE jgħixu b’marda rari. Hemm bejn 6,000 u 8,000 marda rari distinta fl-UE.Ħarsa ġeneraliIs-sistemi tas-saħħa fl-Unjoni Ewropea jfittxu li jipprovdu kura kosteffettiva u ta’ kwalità għolja. Madankollu dan hu partikolarment diffiċli, f’każijiet ta’ mard kumpless rari jew...Il-finanzjament għall-programm l-UE għas-SaħħaSa mill-bidu tiegħu, l-ERNs irċevew finanzjament kontinwu mill-Kummissjoni. Aġġornamenti reċenti News announcement8 Marzu 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases1 min qariNews announcement29 Frar 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)1 min qariNews announcement28 Frar 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together1 min qariNews announcement16 Frar 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseases1 min qariSee all Punti ewlenin ERNs EvaluationGeneral publications30 Ottubru 2023Direttorat Ġenerali għas-Saħħa u s-Sikurezza AlimentariEuropean Reference Networks - 2023 presentation bookletFactsheet28 Frar 2024Direttorat Ġenerali għas-Saħħa u s-Sikurezza AlimentariFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and careInformation video for patients and healthcare professionals Ġrajjiet 22Mej2024Laqgħat tal-imsieħbaBoard of Member States on ERNs – 28th meetingOnline biss07Diċ2023Laqgħat tal-imsieħbaBoard of Member States on ERNs – Exceptional meeting24Ott2023Laqgħat tal-imsieħbaBoard of Member States on ERNs – 27th meeting27Ġun2023Laqgħat tal-imsieħbaBoard of Member States on ERNs – 26th meeting Dokumenti Key documentsEventsConsultationsPublicationsVideos
Mard rariBejn 27 u 36 miljun ruħ fl-UE jgħixu b’marda rari. Hemm bejn 6,000 u 8,000 marda rari distinta fl-UE.
Ħarsa ġeneraliIs-sistemi tas-saħħa fl-Unjoni Ewropea jfittxu li jipprovdu kura kosteffettiva u ta’ kwalità għolja. Madankollu dan hu partikolarment diffiċli, f’każijiet ta’ mard kumpless rari jew...
Il-finanzjament għall-programm l-UE għas-SaħħaSa mill-bidu tiegħu, l-ERNs irċevew finanzjament kontinwu mill-Kummissjoni.
News announcement8 Marzu 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases1 min qari
News announcement29 Frar 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)1 min qari
News announcement28 Frar 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together1 min qari
News announcement16 Frar 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseases1 min qari
General publications30 Ottubru 2023Direttorat Ġenerali għas-Saħħa u s-Sikurezza AlimentariEuropean Reference Networks - 2023 presentation booklet
Factsheet28 Frar 2024Direttorat Ġenerali għas-Saħħa u s-Sikurezza AlimentariFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care