Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.Visión generalLos sistemas de salud de la Unión Europea tratan de ofrecer una atención sanitaria económicamente rentable y de alta calidad. Sin embargo, esto es especialmente difícil en el caso de…EU4Health fundingSince its inception, the ERNs have received continuous funding from the Commission. Últimas actualizaciones News announcement8 de marzo de 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseaseslectura de 1 minNews announcement29 de febrero de 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)lectura de 1 minNews announcement28 de febrero de 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger togetherlectura de 1 minNews announcement16 de febrero de 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseaseslectura de 1 minSee all Lo más destacado ERNs EvaluationGeneral publications30 de octubre de 2023Dirección General de Salud y Seguridad AlimentariaEuropean Reference Networks - 2023 presentation bookletFactsheet28 de febrero de 2024Dirección General de Salud y Seguridad AlimentariaFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and careInformation video for patients and healthcare professionals Actos 07dic2023Reuniones de sociosBoard of Member States on ERNs – Exceptional meeting24oct2023Reuniones de sociosBoard of Member States on ERNs – 27th meeting27jun2023Reuniones de sociosBoard of Member States on ERNs – 26th meeting05oct2022Reuniones de sociosBoard of Member States on ERNs – 25th meeting Documentos Key documentsEventsConsultationsPublicationsVideos
Rare diseasesBetween 27 and 36 million people in the EU live with a rare disease. There are between 6 000 and 8 000 distinct rare diseases in the EU.
Visión generalLos sistemas de salud de la Unión Europea tratan de ofrecer una atención sanitaria económicamente rentable y de alta calidad. Sin embargo, esto es especialmente difícil en el caso de…
News announcement8 de marzo de 2024Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseaseslectura de 1 min
News announcement29 de febrero de 2024JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024)lectura de 1 min
News announcement28 de febrero de 2024Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger togetherlectura de 1 min
News announcement16 de febrero de 2024European Reference Networks: providing specialised support to Ukraine in the field of rare diseaseslectura de 1 min
General publications30 de octubre de 2023Dirección General de Salud y Seguridad AlimentariaEuropean Reference Networks - 2023 presentation booklet
Factsheet28 de febrero de 2024Dirección General de Salud y Seguridad AlimentariaFactsheet - EU action on rare diseases: Improving patient access to knowledge, diagnosis and care